The Ryr 1 Foundation
Non Profit Organization Management, 2127 7th Ave, Pittsburgh, Pennsylvania, 98121, United States, 1-10 Employees
Phone Number: +12*********
Who is THE RYR-1 FOUNDATION
The RYR-1 Foundation is a 501(c)(3) public charity based in Pittsburgh, Pennsylvania, United States. The mission of The RYR-1 Foundation is to support research leading to an effective tre...
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Headquarters: 2127 7th Ave, Pittsburgh, Pennsylvania, 98121, United States
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Date Founded: 2014
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Employees: 1-10
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Revenue: $1 Billion and Over
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Active Tech Stack: See technologies
Industry: Non Profit Organization Management
SIC Code: 5961
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NAICS Code: 621111 |
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Frequently Asked Questions Regarding THE RYR-1 FOUNDATION
Answer: THE RYR-1 FOUNDATION's headquarters are located at 2127 7th Ave, Pittsburgh, Pennsylvania, 98121, United States
Answer: THE RYR-1 FOUNDATION's phone number is +12*********
Answer: THE RYR-1 FOUNDATION's official website is https://ryr1.org
Answer: THE RYR-1 FOUNDATION's revenue is $1 Billion and Over
Answer: THE RYR-1 FOUNDATION's SIC: 5961
Answer: THE RYR-1 FOUNDATION's NAICS: 621111
Answer: THE RYR-1 FOUNDATION has 1-10 employees
Answer: THE RYR-1 FOUNDATION is in Non Profit Organization Management
Answer: THE RYR-1 FOUNDATION contact info: Phone number: +12********* Website: https://ryr1.org
Answer: The RYR-1 Foundation is a 501(c)(3) public charity based in Pittsburgh, Pennsylvania, United States. The mission of The RYR-1 Foundation is to support research leading to an effective treatment or a cure for RYR-1-related diseases (RYR-1-RD). To achieve this mission, The RYR-1 Foundation pursues the following goals: Support Research: The RYR-1 Foundation makes grants to researchers interested in RYR-1-RD. As the only organization solely dedicated to RYR-1-RD, we fund, promote, and highlight research in this area. Our ongoing development of a patient registry is also key to promoting clinical trials of potential therapies. Medical Professional Education: The vast majority of medical professionals have never heard of RYR-1-RD. The RYR-1 Foundation raises awareness through resources on its website, including the latest medical literature, as well as direct meetings with medical professionals around the world. Patient/Family Support and Advocacy: Due to the rarity of RYR-1-RD, receiving this diagnosis can be an anxiety-provoking and isolating experience for affected individuals and their families. The RYR-1 Foundation serves as a resource for patients and their families through its website, other forms of social media, and Family Conferences.
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