Krabbe Connect
Non Profit Organization Management, Po Box 264, Rosemount, Minnesota, 55068, United States, 1-10 Employees
Phone Number: +18*********
Who is KRABBECONNECT
OUR MISSION KrabbeConnect's mission is to be the source of comprehensive information and access to resources for patients with Krabbe disease. The foundation will drive state of the art r...
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Headquarters: Po Box 264, Rosemount, Minnesota, 55068, United States
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Date Founded: 2018
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Employees: 1-10
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Revenue: Under $1 Million
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Active Tech Stack: See technologies
Industry: Non Profit Organization Management
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Frequently Asked Questions Regarding KrabbeConnect
Answer: KrabbeConnect's headquarters are located at Po Box 264, Rosemount, Minnesota, 55068, United States
Answer: KrabbeConnect's phone number is +18*********
Answer: KrabbeConnect's official website is https://krabbeconnect.org
Answer: KrabbeConnect's revenue is Under $1 Million
Answer: KrabbeConnect has 1-10 employees
Answer: KrabbeConnect is in Non Profit Organization Management
Answer: KrabbeConnect top competitors include: Hunter's Hope Foundation , National Organization for Rare Disorders , Rosenau Family Research Foundation
Answer: KrabbeConnect contact info: Phone number: +18********* Website: https://krabbeconnect.org
Answer: OUR MISSION KrabbeConnect's mission is to be the source of comprehensive information and access to resources for patients with Krabbe disease. The foundation will drive state of the art research by bridging the gap between science and patient knowledge. OUR VISION A day in which each patient receives early diagnosis, state of the art care, and lives a life free of disease. OUR MULTICENTER APPROACH Krabbe Connect is committed to pioneering a patient-centered care model and strengthening groundbreaking research by engaging the patients and caregivers with the Krabbe research community, to ensure the needs of Krabbe patients are being voiced. This multi-center collaborative cause will bring improved science, institute data sharing, establish standards of care for all courses of treatment, provide educational videos and continuing education courses, develop an industry-standard patient registry, and be a resource for clinical trial opportunities.
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