International Fop Association
Research, Po Box 196217, City, Florida, Kansas, 32719, United States, 1-10 Employees
Phone Number: +18*********
Who is INTERNATIONAL FOP ASSOCIATION
The International FOP Association is a 501(c)(3) non-profit organization supporting medical research, education and communication for those afflicted by the rare genetic condition Fibrody...
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Headquarters: Po Box 196217, Kansas City, Florida, 32719, United States
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Date Founded: 1988
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Employees: 1-10
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Revenue: $1 Million to $5 Million
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Active Tech Stack: See technologies
Industry: Research
SIC Code: 6282
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Frequently Asked Questions Regarding International FOP Association
Answer: International FOP Association's headquarters are located at Po Box 196217, City, Florida, Kansas, 32719, United States
Answer: International FOP Association's phone number is +18*********
Answer: International FOP Association's official website is https://ifopa.org
Answer: International FOP Association's revenue is $1 Million to $5 Million
Answer: International FOP Association's SIC: 6282
Answer: International FOP Association has 1-10 employees
Answer: International FOP Association is in Research
Answer: International FOP Association contact info: Phone number: +18********* Website: https://ifopa.org
Answer: The International FOP Association is a 501(c)(3) non-profit organization supporting medical research, education and communication for those afflicted by the rare genetic condition Fibrodysplasia Ossificans Progressiva (FOP). FOP is one of the rarest, most disabling genetic conditions known to medicine, it causes bone to form in muscles, tendons, ligaments and other connective tissues. Bridges of extra bone develop across joints, progressively restricting movement and forming a second skeleton that imprisons the body in bone. There are no other known examples in medicine of one normal organ system turning into another. Our mission is to fund research to find a cure for FOP while supporting individuals and their families through education, public awareness and advocacy. Our vision is a cure for FOP. Our primary sources of funding come from FOP family fundraising, public contributions, IFOPA special events, and private foundations. Founded in 1988 by Jeannie Peeper, a woman with FOP, the IFOPA was originally established because Ms. Peeper wanted to bring people with FOP together. Today, the organization has grown to include members across the globe, supports FOP research at the University of Pennsylvania School of Medicine at a rate of approximately $500,000 annually and is a life-support to those who suffer from FOP. To learn more about our "Programs and Services" - we have shared it below. As of 2012, our organization has 500 members representing over 50 countries worldwide, with 300 international members (outside the U.S.) with FOP and 150 members with FOP living in the U.S. Thanks to this global community, we have been able to partner with other FOP organizations around the world, including ones established in Argentina, Australia, Brazil, Canada, France, Germany, Italy, the Netherlands, and Sweden. For a snapshot of IFOPA information, our "Facts-In-Brief Sheet" has been shared below.
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