ForeBatten Foundation

Fore Batten Foundation

Research, 7433 E Journey Ln, Scottsdale, Arizona, 85255, United States, 1-10 Employees

forebatten.org

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Who is FOREBATTEN FOUNDATION

David and Karen Kahn started ForeBatten Foundation in early 2017 when they received the devastating news that their twin girls, Amelia and Makenzie, had been diagnosed with juvenile Batte...

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  • 7433 E Journey Ln, Scottsdale, Arizona, 85255, United States Headquarters: 7433 E Journey Ln, Scottsdale, Arizona, 85255, United States
  • 2009 Date Founded: 2009
  • 1-10 Employees: 1-10
  • dollar-icon Revenue: Under $1 Million
  • tech-icon Active Tech Stack: See technologies

industries-icon Industry: Research

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ForeBatten Foundation Org Chart and Mapping

Employees

Gavin Malenfant

Member of Scientific Advisory Board

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Frequently Asked Questions Regarding ForeBatten Foundation

Answer: ForeBatten Foundation's headquarters are located at 7433 E Journey Ln, Scottsdale, Arizona, 85255, United States

Answer: ForeBatten Foundation's official website is https://forebatten.org

Answer: ForeBatten Foundation's revenue is Under $1 Million

Answer: ForeBatten Foundation has 1-10 employees

Answer: ForeBatten Foundation is in Research

Answer: ForeBatten Foundation contact info: Phone number: Website: https://forebatten.org

Answer: David and Karen Kahn started ForeBatten Foundation in early 2017 when they received the devastating news that their twin girls, Amelia and Makenzie, had been diagnosed with juvenile Batten disease (CLN3); a rare and fatal genetic disorder of the nervous system which leads to vision loss, seizures, and loss of speech and motor function. ForeBatten supports researchers as they develop multiple therapies to detect, treat and potentially cure Batten disease. Rare diseases like Batten do not receive the same government assistance as other, more prevalent diseases, so we must join together as parents and caring individuals who are not willing to accept the fate of a Batten diagnosis. We work tirelessly to give children with Batten disease the best possible life, to spread awareness of the urgency to fund new treatments, and to help all families affected by Batten disease.

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