Erdheim Chester Disease Global Alliance
Non Profit Organization Management, P.O. Box 775, DeRidder, Louisiana, 70634, United States, 1-10 Employees
Phone Number: +12*********
Who is ERDHEIM-CHESTER DISEASE GLOBAL ALLIANCE
The ECD Global Alliance is dedicated to awareness, support, education, and research related to Erdheim-Chester Disease. Towards this mission the organization will work with the global com...
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- Headquarters: P.O. Box 775, DeRidder, Louisiana, 70634, United States
- Date Founded: 2009
- Employees: 1-10
- Revenue: Under $1 Million
- Active Tech Stack: See technologies
Industry: Non Profit Organization Management
SIC Code: 8733
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Erdheim-Chester Disease Global Alliance Org Chart and Mapping
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Frequently Asked Questions Regarding Erdheim-Chester Disease Global Alliance
Answer: Erdheim-Chester Disease Global Alliance's headquarters are located at P.O. Box 775, DeRidder, Louisiana, 70634, United States
Answer: Erdheim-Chester Disease Global Alliance's phone number is +12*********
Answer: Erdheim-Chester Disease Global Alliance's official website is https://erdheim-chester.org
Answer: Erdheim-Chester Disease Global Alliance's revenue is Under $1 Million
Answer: Erdheim-Chester Disease Global Alliance's SIC: 8733
Answer: Erdheim-Chester Disease Global Alliance has 1-10 employees
Answer: Erdheim-Chester Disease Global Alliance is in Non Profit Organization Management
Answer: Erdheim-Chester Disease Global Alliance contact info: Phone number: +12********* Website: https://erdheim-chester.org
Answer: The ECD Global Alliance is dedicated to awareness, support, education, and research related to Erdheim-Chester Disease. Towards this mission the organization will work with the global community to accomplish the following: Raise awareness of ECD. The purpose of this activity is to facilitate early diagnosis of the disease and to stimulate concern and efforts to increase knowledge regarding the disease and treatments. Provide support to those affected by the disease. The purpose of this activity is to lessen the burden as much as possible to those affected by ECD. This support will include, but not necessarily be limited to, providing information, referrals, and one-on-one contact with others affected by the disease. Advocate for and support research programs. The purpose of such research programs is to learn more about (a) the disease, (b) effective treatments for the disease, (c) possible cures, and/or (d) avenues to prevent the disease altogether. This will include, but not necessarily be limited to, collaborating with medical personnel, research personnel and other health organizations to help define areas where research is needed, to fund research, and to help promote the benefits of ECD research to other health agencies. The alliance will also serve as a conduit to transfer needed information from its members to the research community per documented guidelines. Share educational material and facilitate information sharing among interested parties regarding ECD. This will include providing current, reliable, and factual information related to ECD to patients, loved ones, medical personnel, research personnel, media, and other organizations. It will also include promoting, sponsoring and conducting workshops, symposiums and other meetings to promote the goals of the alliance.
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