Chloe's Fight Rare Disease Foundation
Non Profit Organization Management, 343 Sweet Briar Ln, Hopkins, Minnesota, 55343, United States, 1-10 Employees
Who is CHLOE'S FIGHT RARE DISEASE FOUNDATION
Chloes Fight Rare Disease Foundation envisions a world where research gives every child a chance to fight, no matter how rare their disease; a world in which every childhood disease has a...
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- Headquarters: 343 Sweet Briar Ln, Hopkins, Minnesota, 55343, United States
- Date Founded: 2011
- Employees: 1-10
- Revenue: Under $1 Million
- Active Tech Stack: See technologies
Industry: Non Profit Organization Management
SIC Code: 8641
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Frequently Asked Questions Regarding Chloe's Fight Rare Disease Foundation
Answer: Chloe's Fight Rare Disease Foundation's headquarters are located at 343 Sweet Briar Ln, Hopkins, Minnesota, 55343, United States
Answer: Chloe's Fight Rare Disease Foundation's official website is https://chloesfight.org
Answer: Chloe's Fight Rare Disease Foundation's revenue is Under $1 Million
Answer: Chloe's Fight Rare Disease Foundation's SIC: 8641
Answer: Chloe's Fight Rare Disease Foundation has 1-10 employees
Answer: Chloe's Fight Rare Disease Foundation is in Non Profit Organization Management
Answer: Chloe's Fight Rare Disease Foundation contact info: Phone number: Website: https://chloesfight.org
Answer: Chloes Fight Rare Disease Foundation envisions a world where research gives every child a chance to fight, no matter how rare their disease; a world in which every childhood disease has a viable and effective treatment. Our Mission The mission of Chloes Fight Rare Disease Foundation is to support research that focuses on finding and implementing effective cures and treatments for rare childhood genetic diseases such as metachromatic leukodystrophy (MLD). Our Values Access/Equity for affected populations: Many children suffer from diseases that have potential cures but are not receiving adequate funding for further research. We are driven to provide each child with the chance to fight by targeting rare disease research. Fiscal responsibility/efficiency for our donors: Chloes Fight Rare Disease Foundation understands that our contributors make a choice to give to us, many times sacrificially. Contributions are a sacred trust. We are committed to using all funds intentionally and with the purpose of furthering our vision for a world where each rare disease has a treatment. Transparency for contributors and supporters: Chloes Fight Rare Disease Foundation understands that without our faithful supporters we cannot accomplish our mission. We strive to honor each contribution by communicating clearly with donors where their dollars are going and how that money will further the vision to provide each child with a treatment option. Erica and Philip Barnes founded CFRDF in honor of their late daughter Chloe Sophia Barnes (July 12, 2008-November 19, 2010). In addition to promoting rare disease research, Erica is a speech-language pathologist in both the medical and educational setting. Philip is a business architect at U.S. Bank.
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